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Impact of the disease on life expectancy

Dimensions

Magnitude of the impact of the disease on each dimension

Sources of evidence

Overall life expectancy

The course of the disease and life expectancy varies a lot between patients, which hampers strong predictions. The conditions is usually fatal 2 to 4 years after the diagnosis, mostly due to respiratory failure and failure of swallowing muscles. However, there is a large variability in life expectancy amongst patients with ALS. About 10% survive longer than 10 years.

Observational data from Medicare beneficiaries in the US showed a median survival of 17.5m (age >64) and 29m (<65).

Company's submission

Perlroth, Goldman, Lakdawalla and White, 2014 Meeting abstract

Scoring “impact of disease on life expectancy given current treatment"

The disease has...

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